Genomics holds the potential to improve health outcomes, but making genomic data widely available creates ethical, legal and social challenges. Benefits can only be realized with effective regulation and societal trust built through active dialogue and engagement. Moreover, wider information infrastructure and digitalization strategies are necessary so that genomic data can be linked to other information without breaching public trust.
But what do policy-makers need to understand in order to maximise the potential benefits of genomics in health care while addressing concerns over privacy and data security? What needs to be in place to ensure equity? Join us to find out!
Keynote Speaker:
Sandra Liede, Healthtech Finland
Spotlight Speaker:
Stefania Boccia, Universita’ Cattolica del Sacro Cuore, Rome, Italy
Sari Palojoki, Ministry of Social Affairs and Health, Finland
Moderators:
Anna Sagan and Erica Richardson, European Observatory on Health Systems and Policies